Information about NordicSCIR in english
Background: A Nordic cooperation on highly specialized treatments was established by the Nordic council of ministers in 2013. Several pilot projects were launched with the aim of improving co-operation. The Norwegian SCI Registry (NorSCIR) was requested by the Norwegian Directorate of Health to initiate a pilot project, to establish a Nordic SCI quality registry (NordicSCIR).
NorSCIR was established in 2009 as a result of a collaboration between all three SCI units in Norway and the Spinal Cord Injuries Association (LARS). NorSCIR includes individuals with a spinal cord injury, both traumatic and non-traumatic, or with a Cauda Equina lesion.
The aim of the Nordic registry is to improve care for individuals with Spinal Cord Injury (SCI), both traumatic and non-traumatic. NordicSCIR registers data, facilitates comparisons regarding injuries, treatment, and outcomes between patients, centers and countries.
NordicSCIR includes all patients with SCI, hospitalized in one of the seven SCI units in Denmark, Norway, Iceland or in Linkoping, Sweden. The other SCI units in Sweden are planned to be included in near future. Currently Finland is not included.
Written informed consent:
Due to Norwegian law, written informed consent must be obtained before entering data into NordicSCIR. A license for processing personal health data in NordicSCIR is granted by the Norwegian Data Protection Authority.
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